You were diagnosed with Cortical Visual Impairment back in February. With this, you are considered legally blind and you process your vision much different than Daddy and me. You have trouble tracking objects, if you can track them at all. However, your vision has improved so much in the last six months. You watch me move if I walk past you while you are on the floor. You also love the Ipad. You are even giving longer glimpses at mommy :). I sure hope someday you can see how beautiful you are.
With your vision diagnosis, we receive vision therapy once a week. This is a therapy that is not stressful because you don't feel as if you are tortured like in physical therapy, even though I know your PT Keri is helping you and is wonderful. Visual activity is tiring for you. It is not as tiring as physical therapy though. You have had a little room for the past few months. Basically, it is a solid colored box (red, yellow,blue, black) with plexiglass on the top so you can see in and an opening for your feet/body to hang out. A cube missing two pieces, the bottom and the end. Small holes are drilled in the plexiglass to allow for toys to hang by large washers. These toys are solid colored and different textures to allow you to explore. For example, it has a large green jingle bell, a yellow flower, and a silver mylar ballon. These are all for purposes of play and helping stimulate your vision while encouraging new sounds and tactile play while reaching. This is a service we receive from Perkins School for the Blind.
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| You in your light box. |
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| Sweet pea, this is not how you are supposed to use this;) |
Sometimes you are so silly. Just as you started using this therapy tool, you started rolling, a lot. You would roll into the side and get stuck. You would also stay on her belly, silly girl. It doesn't help you when you are on your belly. Monday, we were given a new little room and there is nothing little about it. It is a BIG little room. I can almost sit upright in this room. Now, you can roll again, in your BIG little room. Make your mommy proud. Keep rolling and we can get an even bigger little room.
Love, Mommy
"I sure hope someday you can see how beautiful you are." -I just burst into tears reading this line. Something that a lot of us take for granted, sometimes it takes a little reminder for us to count our blessings and not our worries. Love you Savannah Mae! So proud of you, you've come so far and I see how proud your Mommy is of you daily. Keep up the amazing work sweet Savannah.
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