I really don't have any excuses of why I don't give more attention to writing you more letters about your life thus far. My whole intention is to share our story of you, my sweet angel, to help other parents looking for a story that may help them through their journey and for you to know all you can about our life together. I will try and get better at this:)
The word "blind" never really stood out to me, until about a year ago when Savannah when you were diagnosed with Cortical Visual Impairment and are considered legally blind. Now, every time I hear the word, my heart sinks a little. It's used everywhere. Tonight, I was watching The Bachelor and Sean used the word "blindsided." I'll just say, it takes on a whole new meaning when the love of your life is so visually challenged. I know he didn't mean harm by using the word, it's just this momma is sensitive. I have seen an episode of Family Guy and even Betty White's Off Their Rocker who use blind characters as humor. Really? I don't find any humor in disabilities. I will always stand up and advocate for you. Like I try and preach to the Abi, Emma, and Sam, people with disabilities did not ask to be different. Love them and respect them like you do everyone else. I know you are teaching them acceptance and I am very thankful they love you for you. I strongly believe that if you know someone with different abilities, you will learn so much and have more compassion to those around you.
You are now twenty-one months with slow and steady progress. You still is need help sitting, but your trunk control has improved so much. Today during therapy, you were lifting your head and even looking at the iPad some from your belly. That is a lot of hard work. Sometimes you complain a little, but I would too if I had to work as hard as you do all the time. Even more impressive, you can be held on my hip for longer periods. It makes it so much easier when you don't arch but, well, you make the rules and I just follow your lead. I do try and help prevent you from arching. You are using your vision to watch the iPad and your favorite apps are the ones you can help activate because you really like cause and effect. You really amaze me daily and you are just so darn cute. I can't get enough of you. I love you to the moon and back and then some.
Love, Mommy
